Tilly has Dravet Syndrome, a rare genetic epilepsy which causes seizures that could kill her. Their request to Birmingham Children's Trust for respite was refused with the trust suggesting training grandparents to help, even though the family had told them that was not possible.
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I had to communicate with partners, adjust delivery and launch timelines and keep everyone aligned. It was chaotic, but staying hands-on and problem solving in real time allowed us to manage expectations and move forward despite the delay.